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"[It] is now my responsibility to fulfill that wish:" Clinical and rapid autopsy staff members' experiences and perceptions of HIV reservoir research at the end of life.

Kelly E PerryJeff TaylorHursch PatelSogol Stephanie JavadiKushagra MathurAndy KaytesSusanna Concha-GarciaSusan J LittleDavey SmithSara GianellaKarine Dube
Published in: PloS one (2020)
Understanding staff members' nuanced emotional and procedural experiences is crucial to the Last Gift study's sustainability and will inform similar cure research studies conducted with people living with HIV at the end of life. The study's potential reproducibility depends on a robust research infrastructure with established, interdependent clinical and rapid autopsy teams, continuous community engagement, and an ethical and well-informed engagement process with people living with HIV.
Keyphrases
  • mental health
  • healthcare
  • social media
  • human immunodeficiency virus
  • hiv infected
  • antiretroviral therapy
  • hepatitis c virus
  • hiv aids
  • long term care
  • climate change
  • hiv testing
  • life cycle