Login / Signup

Cystic fibrosis in Turkey: First data from the national registry.

Deniz Dogru ErsozErkan CakirTuğba ŞişmanlarNazan ÇobanoğluSevgi PekcanGüzin CinelEbru YalçınNural KiperVelat ŞenHadice S ŞenÖmür ErcanÖzlem KeskinSevgi B EltanLina M Al ShadfanHakan YazanDerya U AltıntaşAyse Senay SasihuseyinogluNihat SapanŞükrü ÇekiçHaluk ÇokuğraşAyşe A KılınçTuğba R GürsoyAyşe T AslanAyşen BingölAbdurrahman Erdem BaşaranAli OzdemirMehmet KöseMelih HangülNagehan EmiralioğluGökçen TuğcuHasan YükselOzge YılmazFazıl OrhanZeynep G Gayretli AydınErdem TopalZeynep TamayAyşe SüleymanDemet CanCem M BalGönül ÇaltepeUğur Özçelik
Published in: Pediatric pulmonology (2019)
Low coverage rate, lack of genotyping, unidentified mutations, and missing data of lung functions are some of our greatest challenges. Including data of all centers and reducing missing data will provide more accurate data and help to improve the CF care in Turkey in the future.
Keyphrases
  • electronic health record
  • cystic fibrosis
  • big data
  • quality improvement
  • palliative care
  • pseudomonas aeruginosa
  • data analysis
  • current status
  • lung function