Involving Children With Cancer in Health Promotive Research: A Case Study Describing Why, What, and How.
Jens Martin NygrenSusanne LindbergPontus WärnestålPetra SvedbergPublished in: JMIR research protocols (2017)
Challenges in reaching a suitable degree of participation during a research project involve both creating opportunities for children to have genuine influence on the research process and organizing this involvement so that they feel they understand what they are involved in and why. To achieve this, it is essential to enable children to be involved in research over time to gain confidence in the researchers and to develop children's abilities to make decisions throughout the research processes.