Paediatric very rare tumours registration and management in European countries with low health expenditure average rates.
Jelena RoganovicCalogero VirgoneTal Ben AmiYves ReguerreAndrea C FerrariDaniel OrbachJan GodzinskiGianni BisognoNuno Jorge FarinhaMalgorzata KrawczykDominik T SchneiderInes B BrechtEwa BienPublished in: Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico (2024)
In the majority of LHEAR countries, no clinical or research structures have been implemented for children and adolescents with VRT. Therefore, VRT still have an orphan status in these countries. These significant differences on the technology access and use between European regions need to be addressed.