Determinants of adherence and consequences of the transition from adolescence to adulthood among young people with severe haemophilia (TRANSHEMO): A multicentric French national observational cross-sectional study based on the FranceCoag registry.
Ngoc Anh Thu NguyenPascal AuquierAny Beltran AnzolaAnnie HarrocheSabine CastetYoann HugueninSandrine MeunierYohann RepesséRoseline d'OironAntoine RauchDominique DesprezAlexandra SpiegelPierre ChamouniPascale SchneiderKarine BaumstarckMohamed BoucekineClémence TabeleMarie VipreyTanguy LeroyMarie-Anaïs RoquesThomas SanniéNicolas GiraudHervé ChambostNoémie Resseguiernull nullPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)
Adolescents had better adherence to healthcare than YAs. According to the determinants enlightened in this project, targeted supportive strategies and adapted therapeutic education programs can be developed for young PwSH to facilitate their adherence to healthcare.