Education-related needs for children with cystic fibrosis: Perspectives of US pediatric care teams.
Michelle HjelmElizabeth HenteChristine L SchulerQing DuanSarah StrongThomas BoatStephanie S FilignoPublished in: Pediatric pulmonology (2023)
CF care teams often lack comprehensive resources to identify and address education-related concerns. Systematically performing needs assessments, improving training for providers, and evaluating the benefits of education specialists on care teams may better identify and address education-related needs. Supporting educational progression will foster continued independence and well-being in adulthood.