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Education-related needs for children with cystic fibrosis: Perspectives of US pediatric care teams.

Michelle HjelmElizabeth HenteChristine L SchulerQing DuanSarah StrongThomas BoatStephanie S Filigno
Published in: Pediatric pulmonology (2023)
CF care teams often lack comprehensive resources to identify and address education-related concerns. Systematically performing needs assessments, improving training for providers, and evaluating the benefits of education specialists on care teams may better identify and address education-related needs. Supporting educational progression will foster continued independence and well-being in adulthood.
Keyphrases
  • healthcare
  • quality improvement
  • palliative care
  • cystic fibrosis
  • pain management
  • young adults
  • depressive symptoms