The German Central Health Study Hub - A Service to Find and Publish Clinical, Public Health and Epidemiolocal Studies and Associated Documents.
Johannes DarmsVera ClemensMarisabel Gonzalez-OcantoClaudia Brünings-KuppeSelim CiciJuliane FluckPublished in: Studies in health technology and informatics (2024)
The service fills a marked gap and connects both user groups, yet it still needs to be improved in various dimensions (features, content, usage). The impact on the community needs to be further assessed. Despite recent legislative changes (GDNG, EHDS), the system improves the findability of sensitive data, provides a blueprint for similar systems and shows how to create a useful and user-friendly service together with users.