The value of genomic sequencing in complex pediatric neurological disorders: a discrete choice experiment.

Ilias GoranitisStephanie BestZornitza StarkTiffany BoughtwoodJohn Christodoulou

Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2020)

On average, society highly values all diagnostic, process, clinical, and nonclinical components of personal utility. To ensure fair prioritization of genomics, decision makers need to consider the wide range of risks and benefits associated with genomic information.

Keyphrases

single cell
copy number
decision making
human health
climate change
dna methylation
genome wide
social media