Women's perspectives on the ethical implications of non-invasive prenatal testing: a qualitative analysis to inform health policy decisions.
Meredith VanstoneAlexandra CernatJeff NiskerLisa SchwartzPublished in: BMC medical ethics (2018)
Women who have had personal experience with NIPT have concerns and priorities which sometimes contrast dramatically with the theoretical ethics literature. These findings suggest the importance of engaging patients in ethical deliberation about morally complex technologies, and point to the need for more deliberative patient engagement work in this area.
Keyphrases
- public health
- healthcare
- polycystic ovary syndrome
- end stage renal disease
- mental health
- ejection fraction
- newly diagnosed
- magnetic resonance
- pregnant women
- systematic review
- peritoneal dialysis
- decision making
- case report
- social media
- cervical cancer screening
- magnetic resonance imaging
- adipose tissue
- computed tomography
- risk assessment
- big data
- artificial intelligence
- metabolic syndrome
- human health
- patient reported