Parents' Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the Netherlands.
Maartje BlomRobbert G M BrediusMarleen E JansenGert WeijmanEvelien A KemperClementien L VermontIris H I M HollinkWillem A DikJoris M van MontfransMariëlle E van GijnStefanie S HenrietKoen J van AerdeWouter KooleArjan C LankesterEugènie H B M DekkersPeter C J I SchielenMartine C de VriesLidewij HennemanMirjam van der Burgnull nullPublished in: Journal of clinical immunology (2020)
The perspective of parents has led to several recommendations for NBS programs that are considering screening for SCID or other disorders. A close partnership of NBS programs' stakeholders, immunologists, geneticists, and pediatricians-immunologists in different countries is required for moving towards universal SCID screening for all infants.