How to measure patient and family important outcomes in extremely preterm infants: A scoping review.

Anne R SynnesMei Mei LamM Florencia RicciPaige ChurchMarie-Noelle SimardJill G ZwickerThuy Mai Luu

Published in: Acta paediatrica (Oslo, Norway : 1992) (2024)

Valid questionnaires and tools to measure parent-identified outcomes in young preterm children exist. This study will facilitate research and collection of data important to families.

Keyphrases

preterm infants
low birth weight
young adults
case report
electronic health record