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Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users' Experiences.

Victoria PerkinsNeil S CoulsonE Bethan Davies
Published in: Journal of medical Internet research (2020)
The findings suggest that online support communities appear to offer valuable informational and emotional support to those living with TS/TD and their families too, especially given the lack of locally available support. This facilitates a sense of community online, which can help users in overcoming long-standing social isolation and aid self-reported improvements in psychosocial well-being. Users reported some drawbacks in engaging with online support communities, such as conflict between different types of users and triggering content, which negatively affected experiences of community participation.
Keyphrases
  • mental health
  • health information
  • social media
  • healthcare
  • physical activity
  • obsessive compulsive disorder
  • case report
  • deep brain stimulation