Patient empowerment improves follow-up data collection after fetal surgery for spina bifida: institutional audit.
Simen VergoteJ Van der StockY KunpalinE BredakiH MaesS BanhL De CatteRoland DevliegerLiesbeth LewiS DevroeR SpencerA DavidP De VlooF Van CalenberghJan A DeprestPublished in: Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology (2023)
The nature and rate of severe complications were similar to those reported in other larger series. Spontaneous return of outcome data by referring centers was low, yet patient empowerment improved data collection. This article is protected by copyright. All rights reserved.