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Perspectives of extremely prematurely born adults on what to consider in prenatal decision-making: a qualitative focus group study.

Angret de BoerLien de ProostMarieke de VriesMarije HogeveenE J T Joanne VerweijRosa Geurtzen
Published in: Archives of disease in childhood. Fetal and neonatal edition (2023)
Insights into the perspectives of adults born extremely premature deepened our understanding of values considered in decision-making at the limit of viability. Results point out the need for a more individualised prediction of the prognosis and more extensive information on the lifelong impact of an extremely premature birth on both the infant and the family. This could help future parents and healthcare professionals in value-laden decision-making.
Keyphrases
  • decision making
  • gestational age
  • low birth weight
  • pregnant women
  • current status
  • healthcare
  • preterm birth
  • preterm infants