Treatment of patients with rare bleeding disorders in the Netherlands: Real-life data from the RBiN study.

Dominique P M S M MaasJoline L SaesNicole M A BlijlevensMarjon H CnossenPaul L den ExterIlmar C KruisKarina MeijerLaurens NieuwenhuizenMarjolein PetersRoger E G SchutgensWaander L van HeerdeSaskia E M Scholsnull null

Published in: Journal of thrombosis and haemostasis : JTH (2022)

Large heterogeneity in general treatment plans of RBD patients was found. Bleeding after invasive procedures was reported frequently, both before and after RBD diagnosis, irrespective of factor activity levels and particularly when peri-procedural treatment was omitted. Improved guidelines should include uniform recommendations for most appropriate hemostatic products per RBD and emphasize the relevance of individual bleeding history.

Keyphrases

atrial fibrillation
end stage renal disease
ejection fraction
machine learning
prognostic factors
peritoneal dialysis
single cell
artificial intelligence
big data