Health-related quality of life in children and adolescents with congenital diaphragmatic hernia: a cross-sectional study.
Katarina BojanićRuža GrizeljJurica VukovićLana OmerzaMarina GrubićTomislav ĆaletaToby N WeingartenDarrell R SchroederJuraj SprungPublished in: Health and quality of life outcomes (2018)
Patients with CDH had lower HRQoL compared with healthy participants. Parent-reported HRQoL tended to be higher than child-reported HRQoL. Results were also inconsistent for the risk factors associated with HRQoL obtained by using child- and parent-reported scores. Therefore, when interpreting HRQoL in CDH survivors, a proxy report should not be considered a substitute for a child's self-report.