Photography and Social Media Use in Community-Based Participatory Research with Youth: Ethical Considerations.
Maryam Kia-KeatingDiana SantacroseSabrina LiuPublished in: American journal of community psychology (2017)
Community-based participatory researchers increasingly incorporate photography and social media into their work. Despite its relative infancy, social media has created a powerful network that allows individuals to convey messages quickly to a widespread audience. In addition to its potential benefits, the use of social media in research also carries risk, given the fast pace of exchanges, sharing of personal images and ideas in high accessibility, low privacy contexts and continually shifting options and upgrades. This article contributes to the literature examining ethical considerations for photography and social media use in community-based participatory research. We describe three key ethical dilemmas that we encountered during our participatory photography project with Latina/o youth: (a) use and content of images and risk; (b) incentives and coercion; and (c) social media activity and confidentiality. We provide our responses to these challenges, contextualized in theory and practice, and share lessons learned. We raise the question of how to contend with cultural shifts in boundaries and privacy. We propose that evaluating participant vulnerability versus potential empowerment may be more fitting than the standard approach of assessing risks and benefits. Finally, we recommend upholding the principles of participatory research by co-producing ethical practices with one's participants.
Keyphrases
- social media
- health information
- primary care
- healthcare
- deep learning
- physical activity
- decision making
- mental health
- young adults
- quality improvement
- climate change
- big data
- optical coherence tomography
- human health
- hepatitis c virus
- artificial intelligence
- smoking cessation
- weight gain
- men who have sex with men
- human immunodeficiency virus