Establishing a core outcome measure for pain in patients with autosomal dominant polycystic kidney disease: a consensus workshop report.
Patrizia NataleRonald D PerroneAllison TongTess HarrisElyssa HannanAngela JuEva BurnetteNiek F CasteleijnArlene ChapmanSarah EasttyRon T GansevoortMarie HoganShigeo HorieBertrand KnebelmannRichard LeeReem A MustafaRichard SandfordAmanda BaumgartJonathan C CraigGopala K RanganBénédicte SautenetAndrea K ViecelliNoa AmirNicole EvangelidisChandana GuhaCharlotte LogemanKarine Estelle ManeraAndrea Matus GonzalezMartin HowellGiovanni F M StrippoliYeoungjee ChoPublished in: Clinical kidney journal (2021)
Existing measures were found to be insufficient in capturing pain as a core outcome and there was consensus on the need for a new validated measure that is simple, succinct and addresses the impact of pain on life participation. This measure will facilitate the appropriate prioritization of pain in all trials and guide clinical decision making in people with ADPKD.