Leveraging expertise and optimizing clinical research: Initial success of a pediatric epilepsy surgery collaborative.
Madison M BerlJennifer I KoopAlyssa S AilionDonald J BeardenKatrina BoyerCrystal M CooperAmanda M DecrowPriscilla H DuongPatricia Espe-PfeiferMarsha GabrielElise HodgesDavid F MarshallKelly A McNallyAndrew E MolnarEmily K OlsenKim E OnoKristina E PatrickBrianna M PaulJonathan RomainLeigh N SepetaRebecca L H StilpGreta N WilkeningMichael ZaccarielloFrank ZelkoMichael Scott Perrynull nullPublished in: Epilepsia (2023)
We established a collaborative network and fundamental infrastructure to address questions outlined by the Epilepsy Research Benchmarks. There is a wide range in the age and IQ of patients considered for pediatric epilepsy surgery, yet it appears that social determinants of health impact access to care. Consistent with other national cohorts, this US cohort has a downward shift in IQ associated with seizure severity.
Keyphrases
- quality improvement
- minimally invasive
- healthcare
- end stage renal disease
- coronary artery bypass
- newly diagnosed
- temporal lobe epilepsy
- public health
- chronic kidney disease
- ejection fraction
- palliative care
- surgical site infection
- peritoneal dialysis
- prognostic factors
- acute coronary syndrome
- health information
- risk assessment
- chronic pain
- climate change
- patient reported
- health insurance
- human health
- childhood cancer