Presurgical Infant Orthopedic Videos on YouTube™: A Thematic Analysis of Caregiver Narratives.

Raed AlrubaiaanBhavana NairFatemeh Amir-RadMay AljanahiVijay Kumar SSabarinath Prasad

Published in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2024)

Multifaceted challenges and coping strategies were described by caregivers during the PSIO phase. Caregivers remained committed to treatment despite the burden of care, were motivated by an understanding of the benefits of PSIO, and customized care based on their individual strengths and needs. Study results can help providers gain an understanding of what caregivers experience outside the clinical environment.

Keyphrases

palliative care
healthcare
depressive symptoms
pain management
affordable care act
risk factors
combination therapy