Evaluating the "return on patient engagement initiatives" in medicines research and development: A literature review.

Lidewij Eva Vat Teresa M D Finlay Tjerk Jan Schuitmaker-Warnaar Nick FahyPaul RobinsonMathieu BoudesAna DiazElisa FerrerVirginie HivertGabor PurmanMarie-Laure KürzingerRobert A KroesClaudia HeyJacqueline E W Broerse

Published in: Health expectations : an international journal of public participation in health care and health policy (2019)

Currently available indicators and methods are of some use in measuring impact but are not sufficient to understand the pathway to impact, nor whether interaction between researchers and patients leads to change. We suggest that the impacts of patient engagement can best be determined not by applying single indicators, but a coherent set of measures.

Keyphrases

case report
end stage renal disease
social media
ejection fraction
newly diagnosed
chronic kidney disease
peritoneal dialysis
quality improvement