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Variability of Care and Access to Transplantation for Children with Biliary Atresia Who Need a Liver Replacement.

Jean de Ville de GoyetToni IllhardtChristophe ChardotPeace N DikeUlrich BaumannKatherine BrandtBarbara E WildhaberMikko P PakarinenFabrizio di FrancescoEkkehard SturmMarianna CornetCaroline P LemoineEva Doreen PfisterAna M CalinescuMaria HukkinenSanjiv HarpavatFabio TuzzolinoRiccardo Superina
Published in: Journal of clinical medicine (2022)
As LT currently results in BA patient survival exceeding 95% in many expert LT centers, the paradigm for BA management optimization and survival have currently shifted to the pre-LT management. The creation of networks dedicated to the timely referral to a pediatric transplant center and possibly centralization of care should be considered, in combination with implementing all different graft type surgeries in specialist centers (including split and living donor LTs) to achieve timely LT in this vulnerable population.
Keyphrases
  • palliative care
  • quality improvement
  • healthcare
  • primary care
  • free survival
  • pain management
  • affordable care act
  • clinical practice
  • health insurance
  • chronic pain