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Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity.

Janet K ShimNicole FotiEmily VasquezStephanie Malia FullertonMichael BentzMelanie JeskeSandra Soo-Jin Lee
Published in: AJOB empirical bioethics (2023)
Upstream choices about CE and constraints of time and resources cascade into tradeoffs that often culminated in "pantomime community engagement." This approach can create downstream costs when engagement is experienced as improvised and sporadic. Transformations are needed for CE to be seen as a necessary scientific investment and part of the scientific process.
Keyphrases
  • social media
  • healthcare
  • mental health
  • primary care
  • late onset