Building a culture of engagement at a research centre for childhood disability.
Kinga PozniakFrancine BuchananAndrea CrossJennifer CrowsonBarb GaluppiDanijela GrahovacJan Willem GorterOksana HlyvaMarjolijn KetelaarOlaf Kraus de CamargoManda Krpan MesicRachel MartensDayle McCauleyLinda NguyenRobert J PalisanoMichelle PhoenixConnie PuttermanPeter RosenbaumJennifer SprungSonya StrohmRachel TeplickyDonna ThomsonMarilyn WrightPublished in: Research involvement and engagement (2021)
Engaging patients and families as partners in research constitutes a culture shift in health research, whereby studies about patients and families are carried out with them. Developing a community of engagement that transcends an individual research study is a step towards creating a culture of research that is truly shaped by the people about whom the research is being done.