Exploring the caregiver's experience in an innovative homebound hematopoietic stem cell transplantation program.

Juliet JenkelowitzMargaux Genoff GarzonKathleen LynchElyse ShukEva FeindlerHeather LandauAllison J Applebaum
Published in: Palliative & supportive care (2021)
Caregivers perceived the homebound program as offering high-quality medical care in a setting that provided a sense of normalcy, privacy, and greater level of oversight. Unmet needs included lacking preparedness in completing nursing responsibilities and handling caregiver and patient distress. While the homebound program was preferred to routine hospital care, psychotherapeutic support and programming to improve caregiver preparedness in a homebound HSCT recovery program is indicated.