The Type 1 & 2 systemic lupus erythematosus model: Perspectives of people living with systemic lupus erythematosus.
Amanda M EudyMegan Eb ClowseAmy CorneliKevin McKennaDavid S PisetskyMithu MaheswaranathanDana R BurshellJayanth DossKai SunRebecca E SadunLisa G Criscione-SchreiberJennifer L RogersPublished in: Lupus (2024)
We demonstrated content and face validity of the Type 1 & 2 SLE model with people living with SLE. Participants in our study largely understood the model and felt it accurately reflected their experience living with SLE. Type 2 SLE symptoms are very common in individuals with SLE and impact patients' quality of life. Using the model to address Type 2 SLE symptoms allows the rheumatologist to incorporate the patient's perspective and provide patient-centered care.