What aspects of health and wellbeing are most important to parent carers of children with disabilities?

Caomhan McGlinchey Phillip Antony Harniess Aleksandra J Borek Alice Garrood Annabel McDonald Fleur Boyle Stuart Logan Christopher Morris

Published in: Health expectations : an international journal of public participation in health care and health policy (2024)

Our team carries out patient and public involvement (PPI) through a Family Faculty group facilitated by a Family Involvement Co-ordinator (A. McD.) who is herself a parent carer. A study-specific PPI working group was established which included members of the Family Faculty. The PPI group advised on various aspects of the research as reported in the paper. The manuscript was co-authored by the team's Family Involvement Co-ordinator (A. McD.).

Keyphrases

healthcare
mental health
protein protein
palliative care
public health
young adults
medical students
emergency department
risk assessment
climate change
social media
health information
human health
drug induced
adverse drug