An Innovative Approach to Informing Research: Gathering Perspectives on Diabetes Care Challenges From an Online Patient Community.
Emily B SchroederJay R DesaiJulie A SchmittdielAndrea R PaolinoJennifer L SchneiderGlenn K GoodrichJean M LawrenceKatherine M NewtonGregory A NicholsPatrick J O'ConnorMarcy Fitz-RandolphJohn F SteinerPublished in: Interactive journal of medical research (2015)
Lifestyle and interpersonal factors were particularly challenging for our online sample of adults with Type 1 or Type 2 diabetes. Our study demonstrates the innovative use of social networking sites and online communities to gather rapid, meaningful, and relevant patient perspectives that can be used to inform the development of research agendas.