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Research participants' preferences for receiving genetic risk information: a discrete choice experiment.

Jennifer Viberg JohanssonSophie LangenskiöldPär SegerdahlMats G HanssonUlrika Ugander HöstereyAnders GummessonJorien Veldwijk
Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2019)
Information about an effective preventive measure was most important for participants. They valued that attribute twice as much as the other attributes. Therefore, when there is an effective preventive measure, risk communication can be less concerned with the magnitude of the probability of developing disease.
Keyphrases
  • health information
  • healthcare
  • copy number
  • breast cancer risk