Establishing an International Interdisciplinary Research Network in Craniofacial Microsomia: The CARE Program.
Nicola Marie StockCanice E CrerandAlexis L JohnsChristy M McKinneyMaarten J KoudstaalAmelia DrakeCarrie L HeikePublished in: The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association (2023)
The CARE program provides a comprehensive approach to understanding the experiences of individuals with CFM and their caregivers. Challenges encountered and lessons learned are shared for the benefit of the community.