Experience of Daily Life with Generalized Myasthenia Gravis: A Qualitative Investigation and Assessment of Instrument Content Validity.

Christopher A HartfordSteven A ShermanStella KarantzoulisIsabelle GuilleminMichael G PhinneyKimberly L KellyKayla E NegronShruti M RajaDiana Rofail

Published in: Neurology and therapy (2023)

This research provides a holistic understanding of gMG signs, symptoms, and impacts experienced by patients, as observed by patients and clinicians. The conceptual model of gMG highlights the range of signs, symptoms, and impacts that adult patients with gMG experience in their everyday lives, emphasizing the humanistic impact and unmet needs.

Keyphrases

end stage renal disease
ejection fraction
newly diagnosed
peritoneal dialysis
patient reported outcomes
myasthenia gravis
physical activity
patient reported