Li-Fraumeni Exploration Consortium Data Coordinating Center: Building an Interactive Web-Based Resource for Collaborative International Cancer Epidemiology Research for a Rare Condition.
Phuong L MaiSharon R SandNeiladri SahaMauricio ObertiTom DolafiLisa DiGianniElizabeth J RootXianhua KongRenee C BremerKarina Miranda SantiagoJasmina BojadzievaDerek BarleyAna NovokmetKaren A KetchumNgoc NguyenShine JacobKim E NicholsChristian P KratzJoshua D SchiffmanDafydd Gareth EvansMaria Isabel AchatzLouise C StrongJudy E GarberSweta A LadwaDavid MalkinJeffrey N WeitzelPublished in: Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology (2020)
These methods can serve as a framework in establishing other collaborative research efforts. Data from the consortium will serve as a great resource for collaborative research to improve knowledge on, and the ability to care for, individuals and families with Li-Fraumeni syndrome.