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Engaging people with lived experience on advisory councils of a national not-for-profit: an integrated knowledge translation case study of Heart & Stroke Mission Critical Area Councils.

Krystina B LewisNedra Peternull nullIan D GrahamAnita Kothari
Published in: Health research policy and systems (2022)
 Heart & Stroke's intended objectives for the MCA councils, to promote engagement and dialogue among community members including PWLE, clinician scientists, and researchers, and to provide advice into Heart & Stroke's strategic renewal process, were achieved. This collaborative structure and process for PWLE engagement within a community of multidisciplinary clinician scientists and researchers is possible yet requires flexibility, commitment to stakeholder relationship management, and considerable resources. These findings may be helpful for other not-for-profit and funding organizations interested in engaging the public and other stakeholders into their organizational activities.
Keyphrases
  • atrial fibrillation
  • healthcare
  • mental health
  • heart failure
  • quality improvement
  • social media
  • emergency department
  • cerebral ischemia
  • brain injury