Controlling my genome with my smartphone: first clinical experiences of the PROMISE system.
Ali AmrMarc HindererLena GriebelDominic DeuberChristoph EggerFarbod Sedaghat-HamedaniElham KayvanpourDaniel HuhnJan HaasKaren FreseMarc SchweigNinja MarnauAnnika KrämerClaudia DurandFlorian BattkeHans-Ulrich ProkoschMichael BackesAndreas KellerDominique SchröderHugo A KatusNorbert FreyBenjamin MederPublished in: Clinical research in cardiology : official journal of the German Cardiac Society (2021)
PROMISE democratizes genomic data by a transparent, secure, and patient-centric approach. This clinical pilot study evaluating a genetic data infrastructure is unique and shows that patient's acceptance of data sharing can be increased by patient-centric decision-making.