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Advancing childhood cancer research through young investigator and advocate collaboration.

Amber K WeinerAntonia PalmerMelanie Frost MollGavin LindbergKevin ReidySharon J DiskinCrystal L MackallJohn M MarisPatrick J Sullivan
Published in: bioRxiv : the preprint server for biology (2023)
Questionnaire results show both advocates and YI's see this structure to be valuable and beneficial. YI's communicated their research to a non-scientific audience and learned advocate's experience. This was their first advocacy experience for most YIs. Advocates learned more about the research being conducted to provide hope. They can also aid with fundraising, publicity and lobbying. This collaboration improves science communication, designing patient-friendly clinical trials and sharing experience across institutions.
Keyphrases
  • clinical trial
  • childhood cancer
  • public health
  • young adults
  • social media
  • case report
  • healthcare
  • cross sectional
  • psychometric properties
  • study protocol