Uptake of Genetic Research Results and Patient-Reported Outcomes With Return of Results Incorporating Web-Based Predisclosure Education.
Madison K KilbrideBrian L EglestonWendy K ChungOlufunmilayo I OlopadeKara N MaxwellPayal Deepak ShahJane E ChurpekLinda FleisherMary Beth TerryDominique FetzerJill Bennett GaieskiJessica BulafkaAileen EspinalKelsey KarpinkSarah A WalserDavone SingletonMonica PaleseIlona SiljanderAmanda BrandtDana ClarkCarrie KovalJulia WynnKatherine L NathansonDanielle B McKennaJacquelyn PowersSarah M NielsenSusan M DomchekKatherine L NathansonAngela R BradburyPublished in: Journal of clinical oncology : official journal of the American Society of Clinical Oncology (2023)
Interest in web-based predisclosure education for return of genetic research results was high although it did not increase uptake of results. We found no negative patient-reported outcomes with web education, suggesting that it is a viable alternative delivery model for reducing burdens and costs of returning genetic research results. Attention to attrition and lower uptake of results among Black participants and those with less formal education are important areas for future research.