Exploring the provision and support of care for long-term conditions in dementia: A qualitative study combining interviews and document analysis.
Jessica Laura ReesAlexandra BurtonKate WaltersClaudia CooperPublished in: Dementia (London, England) (2023)
These findings reflect the dynamic nature of dementia care which requires the adaptation of support in response to changing need. We witnessed the daily realities for families of implementing care recommendations in the community, which were often adapted for the contexts of family carers' priorities for care of the person living with dementia and what they were able to provide. Realistic self-management plans which are deliverable in practice must consider the intersection of physical, cognitive and mental health needs and priorities, and family carers needs and resources.