Using Patient-Reported Health Data From Social Media to Identify Diverse Lupus Patients and Assess Their Symptom and Medication Expressions: A Feasibility Study.
R Swamy VenuturupalliAmit KumarAlden BunyanNikhil DavuluriNatalie FortuneKatja ReuterPublished in: Arthritis care & research (2022)
Our results indicate that social media surveillance can provide valuable data of clinical relevance from the perspective of lupus patients. The medical community has the opportunity to harness this information to inform the patient-centered care within underrepresented patient groups, such as POCs.