Establishing a regional registry for neonatal encephalopathy: impact on identification of gaps in practice.
Mohamed El-DibHoda El-ShibinyBrian WalshSara CherkerzianJason BoulangerSara V BatesIvana CulicMunish GuptaAnne HansenEmily HerzbergKyoung JoungCarol KeohaneSilvia PatriziJanet S SoulTerrie Indernull nullPublished in: Pediatric research (2023)
Malpractice insurance companies can take an active role in supporting clinicians in establishing clinical practice guidelines and regional registries. Establishing a collaborative regional neonatal encephalopathy (NE) registry is feasible. Data Collection tools for a NE registry have been made publicly available to be adopted and replicated by other groups. Establishing a regional NE registry allowed for the identification of gaps in knowledge, variations in practice, and the opportunity to advance care through quality improvement projects.