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Understanding Barriers Along the Patient Journey in Alzheimer's Disease Using Social Media Data.

Amir Abbas Tahami MonfaredYaakov SternStephen DooganMichael IrizarryQuanwu Zhang
Published in: Neurology and therapy (2023)
This descriptive analysis of out-of-clinic experiences reflected in AD social media posts found that unwillingness/resistance to seeking care was a key barrier, followed by structural barriers to health care, such as affordability/cost. Insights from the lived experiences of AD stakeholders are valuable and highlight the need to improve the patient journey in AD and ease patient and caregiver burden.
Keyphrases
  • social media
  • health information
  • healthcare
  • case report
  • mental health
  • palliative care
  • cognitive decline
  • machine learning
  • big data
  • mild cognitive impairment
  • pain management