International consensus recommendations for the identification and treatment of tuberous sclerosis complex-associated neuropsychiatric disorders (TAND).
Petrus J de VriesTosca-Marie HeunisStephanie VancloosterNola J ChambersStacey BissellAnna W ByarsJennifer FlinnTanjala T GipsonAgnies M van EeghenRobert WaltereitJamie K CapalSebastián CukierPeter E DavisCatherine SmithJ Chris KingswoodEva SchoetersShoba SrivastavaMegumi TakeiSugnet Gardner-LubbeAubrey J KummDarcy A KruegerMustafa SahinLiesbeth De WaeleAnna C JansenPublished in: Journal of neurodevelopmental disorders (2023)
The consensus recommendations should provide a systematic framework to approach the identification and treatment of TAND for health, educational, social care teams and families who live with TSC. To ensure global dissemination and implementation of these recommendations, partnerships with the international TSC community will be important. One of these steps will include the generation of a "TAND toolkit" of "what to seek" and "what to do" when difficulties are identified in TAND clusters.