Haemophilia Experiences, Results and Opportunities (HERO study) in Brazil: Assessment of the psychosocial effects of haemophilia in patients and caregivers.

Claudia Santos LorenzatoRafael B SantosGabriel Z Z FagundesMargareth C Ozelo

Published in: Haemophilia : the official journal of the World Federation of Hemophilia (2019)

Our study presents an overview of the psychosocial aspects of life with haemophilia in Brazil, providing a basis for health policy decisions and may further improve comprehensive care for PWH.

Keyphrases

mental health
healthcare
public health
end stage renal disease
palliative care
chronic kidney disease
newly diagnosed
peritoneal dialysis
pain management
health information
health insurance
patient reported