"Am I normal?" The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers.

Simone Oerlemans Lindy Paulina Johanna Arts Nicole Je Horevoorts Lonneke V van de Poll-Franse

Published in: Journal of medical Internet research (2017)

A high number of patients with lymphoma wished to receive PRO feedback. Patients reported the comparison of their scores versus a lymphoma reference cohort as most valuable. Further research should investigate whether PRO feedback could increase empowerment and possibly improve HRQoL.

Keyphrases

patient reported outcomes
diffuse large b cell lymphoma
end stage renal disease
chronic kidney disease
anti inflammatory
prognostic factors
peritoneal dialysis