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Underrepresented and Underserved Populations in Neurological Research.

Charles C WindonAshley J JacksonGloria A AguirreMiwa TuckerAlinda AmuiriTanisha Hill-JarrettMiranda ChenStefanie D Pina EscuedroKevin LieuLucia LopezDiana MeiBoon Lead TeeCaitlin W WatsonChidera AgwuJoel KramerSerggio Lanata
Published in: Seminars in neurology (2024)
Underserved and underrepresented populations have historically been excluded from neurological research. This lack of representation has implications for translation of research findings into clinical practice given the impact of social determinants of health on neurological disease risk, progression, and outcomes. Lack of inclusion in research is driven by individual-, investigator-, and study-level barriers as well as larger systemic injustices (e.g., structural racism, discriminatory practices). Although strategies to increase inclusion of underserved and underrepresented populations have been put forth, numerous questions remain about the most effective methodology. In this article, we highlight inclusivity patterns and gaps among the most common neurological conditions and propose best practices informed by our own experiences in engagement of local community organizations and collaboration efforts to increase underserved and underrepresented population participation in neurological research.
Keyphrases
  • healthcare
  • mental health
  • primary care
  • clinical practice
  • cerebral ischemia
  • physical activity
  • social media
  • type diabetes
  • risk assessment
  • adipose tissue
  • climate change
  • health information
  • quality improvement