Family caregiver roles and challenges in assisting patients with cancer treatment decision-making: Analysis of data from a national survey.
James Nicholas Dionne-OdomErin E KentGabrielle B RocqueAndres AzueroErin R HarrellShena GazawayRhiannon D ReedReed W BratchesAvery C BechtholdKyungmi LeeFrank PugaEllen Miller-SonetKatherine A OrnsteinPublished in: Health expectations : an international journal of public participation in health care and health policy (2023)
The CancerCare® survey was developed in partnership with caregiving services and research experts to describe the role of cancer family caregivers in patient decision-making and assess their needs for support. All survey items were reviewed by a CancerCare advisory board that included five professional patient advocates and piloted by a CancerCare social worker and other staff who provide counselling to cancer caregivers.