Parents of newborns in the NICU enrolled in genome sequencing research: hopeful, but not naïve.
Courtney BerriosCatherine KoertjeJanelle Noel-MacDonnellSarah SodenJohn D LantosPublished in: Genetics in medicine : official journal of the American College of Medical Genetics (2019)
Parents who enrolled their newborn in a RCT of GS demonstrated awareness of a psychological risk, but generally held positive beliefs about GS and perceived the benefits outweighed the risk.