Towards a comprehensive and interoperable representation of consent-based data usage permissions in the German medical informatics initiative.
Raffael BildMartin BialkeKaroline BuckowThomas GanslandtKristina IhrigRoland JahnsAngela MerzweilerSybille RoschkaBjörn SchreiweisSebastian StäubertSven ZenkerFabian PrasserPublished in: BMC medical informatics and decision making (2020)
The proposed digital representation is (1) generic enough to capture relevant information from a wide range of consent documents and data use regulations and (2) interoperable with common technical standards. We plan to extend our model to include more fine-grained status codes and rules for automated access control.