Burdensome Transitions of Care for Patients with End-Stage Liver Disease and Their Caregivers.
Nneka N UfereJohn DonlanTeresa IndrioloJames RichterRyan ThompsonVicki JacksonAngelo VolandesRaymond T ChungLara TraegerAreej El-JawahriPublished in: Digestive diseases and sciences (2020)
Transitional care models that attend to the informational, psychosocial, and practical domains of care are needed to better support patients with ESLD and their caregivers at the time of diagnosis and beyond. Without attending to the multidimensional care needs of newly diagnosed patients with ESLD and their caregivers, they are at risk of burdensome transitions of care, high healthcare utilization, and poor health-related quality of life.