Qualitative Parental Perceptions of a Paediatric Multidisciplinary Team Clinic for Prader-Willi Syndrome
Jennifer S. CoxClaire SempleRhian AugustusMelanie WennShelley EasterRebecca BroadbentDinesh GiriElanor C. HintonPublished in: Journal of clinical research in pediatric endocrinology (2021)
This is the first paper that documents the parental perspective of an MDT clinic for children with PWS. The families felt an MDT clinic was superior to current care, offering more convenient access to an enhanced service, which would provide integrated and consistent care for their children’s diverse, challenging and changing needs.