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Qualitative Parental Perceptions of a Paediatric Multidisciplinary Team Clinic for Prader-Willi Syndrome

Jennifer S. CoxClaire SempleRhian AugustusMelanie WennShelley EasterRebecca BroadbentDinesh GiriElanor C. Hinton
Published in: Journal of clinical research in pediatric endocrinology (2021)
This is the first paper that documents the parental perspective of an MDT clinic for children with PWS. The families felt an MDT clinic was superior to current care, offering more convenient access to an enhanced service, which would provide integrated and consistent care for their children’s diverse, challenging and changing needs.
Keyphrases
  • healthcare
  • primary care
  • quality improvement
  • palliative care
  • young adults
  • mental health
  • intensive care unit
  • emergency department
  • pain management
  • affordable care act
  • chronic pain