Motivations and expectations of parents seeking genetic testing for their children with ocular genetic disease.
Hannah GageLeah WetherillKatelynn AndersonErin ConboyKathryn HaiderPublished in: Ophthalmic genetics (2023)
Parents seem to be generally satisfied by the care from their ocular genetics team. However, families' desires are not being fully met, especially with information about prognosis and support resources. As the field of ocular genetics continues to grow, it is important we improve these offerings and optimize care for this patient population.