Login / Signup

Motivations and expectations of parents seeking genetic testing for their children with ocular genetic disease.

Hannah GageLeah WetherillKatelynn AndersonErin ConboyKathryn Haider
Published in: Ophthalmic genetics (2023)
Parents seem to be generally satisfied by the care from their ocular genetics team. However, families' desires are not being fully met, especially with information about prognosis and support resources. As the field of ocular genetics continues to grow, it is important we improve these offerings and optimize care for this patient population.
Keyphrases
  • palliative care
  • quality improvement
  • healthcare
  • optic nerve
  • affordable care act
  • case report
  • genome wide
  • mental health
  • gene expression
  • dna methylation
  • social media
  • pain management
  • health information
  • chronic pain